Siberian Federal University

Issue

Journal of Siberian Federal University. Humanities & Social Sciences. 2022 15 (8)

Authors

Kovba, Daria M.; Moiseenko, Yan Yu.

Contact information

Kovba, Daria M.: Institute of Philosophy and Law of the Ural Branch of the Russian Academy of Sciences Ekaterinburg, Russian Federation; ; Moiseenko, Yan Yu.: Institute of Philosophy and Law of the Ural Branch of the Russian Academy of Sciences Ekaterinburg, Russian Federation

Keywords

genetic research; human rights; personal dignity; discrimination; ethics; eugenics; legal regulation

Abstract

The present paper discusses ethical and socio-political aspects of genetic research and technologies; the readiness of the international legislation to regulate genetic interference is also within the remit of the discussion. Research methods include a discursive approach, a chronological method, as well as a number of methods applied in legal science. The paper also highlights the problems of genetics inherited from eugenics (such as reductionism and a balance between private and public spheres) and raises the problem of discrimination on genetic grounds, which requires specific laws to protect the rights in the considered area. The analysis of international legislation has shown its central ideas to be respect for human dignity, rights and freedoms, the principle of autonomy. Bioethics proves to have made a great contribution to the development of ethical principles in the field of genetic research, while the standard-setting role here belongs to UNESCO. The declarations developed by this organization have a number of weaknesses (non-binding nature, lack of practical recommendations, etc.). Despite this, the authors argue in favor of continuing the work of bioethics committees

Pages

1204–1214

DOI

10.17516/1997-1370-0921

Paper at repository of SibFU

https://elib.sfu-kras.ru/handle/2311/147475

This work is licensed under a Creative Commons Attribution-NonCommercial 4.0 International License (CC BY-NC 4.0).